THE DEBATES OF THE EHEALTH SUMMER UNIVERSITY – Health data: The great hypocrisy?
Hosted by Lionel Buannic, journalist
Specific hosting constraints, round tables on the subject at each event with always the same conclusion – the importance of protection and cries of horror whenever the question of monetisation is raised – health data and the frameworks for its collection and utilisation are omnipresent every time we talk about digital health. Representatives from the medical world, patient’s representatives and legislators are unanimous: this data must be treated as sacred and protected. In fact, it is – its hosting involves more constraints than are applied for bank data. But is it REALLY better protected? Why do so many people give up their health data to Facebook and Google for example? In the end, are patients as worried as all that for their data? What price are they really ready to pay for this “security”? Has anyone even thought of asking them?
This major round table will be an opportunity to examine all of these questions.
With the participation of:
- Robert Chu, CEO, Embleema
- Elaine Colgain, head of eHealth and EU Engagement – Northern Ireland Department of Health
- David Gruson, founder of Ethik-IA, member of the Management Board of the Healthcare Chair, Higher Institute of Political Studies, Paris
- Bruno Salgues, Director of Studies, Institut Mines-Télécom Higher Institute of Engineering
During this session, 2 accounts of first-hand experience will feed the debates:
- The experience of a legal expert: Maud Lambert, Counsel, Hoche Société d’Avocats
- Presentation of an innovative initiative: Jean-Louis – Fraysse, Director of the Digital 113 cluster, head of the Factory eHealth Commission